ME/CFS & Long COVID

ME/CFS and Long COVID are debilitating conditions that can profoundly disrupt daily life,
seemingly affecting nearly every body system.

Their invisible nature often makes it difficult for others to grasp the extent of the impact, leading to challenges in communication and a deep sense of isolation. The limitations imposed by these conditions can create feelings of frustration and a loss of control.

While medical management is vital in treating ME/CFS and Long COVID, effective self-management is equally essential for optimizing health and enhancing quality of life. Occupational Therapists (OTs) are uniquely equipped to support individuals in developing personalized self-management strategies that address the multifaceted challenges of these conditions.

OTs serve as valuable allies in navigating the complexities of ME/CFS and Long COVID.

By addressing both the physical and psychological aspects, OTs help individuals regain a sense of control, improve overall well-being, and increase participation in meaningful activities.

Here are some ways our OTs can support you in managing this condition:

  • Teach strategies to balance activity and rest, helping to prevent overexertion and manage fatigue.

  • Assist in identifying patterns and triggers to better manage symptoms and plan daily activities accordingly.

  • Help adapt daily tasks to reduce physical strain and ensure activities are manageable within energy limits.

  • Provide techniques to manage cognitive difficulties such as brain fog, including memory aids, task organization, and time management strategies.

  • Introduce relaxation techniques, mindfulness practices, and coping strategies to manage the emotional impact of chronic illness.

  • Recommend adjustments to the home or work environment to minimize physical demands and create a more supportive space.

  • Offer guidance on establishing routines and making environmental changes to improve sleep quality.

  • Support the development of skills to effectively communicate needs and limitations to family, friends, and healthcare providers.

  • Assist in gradually resuming social and community activities in a way that aligns with the individual’s energy levels and capabilities.

  • Help create sustainable routines and strategies for managing symptom fluctuations over time, aiming to improve overall quality of life.